Tuesday, March 6, 2012

Day 10

5:45pm
Yesterdays blog was somehow lost.  This is how we keep our families posted and so sorry about that.

Yesterday was our last day in the ICU once a bed became available on the Step Down unit...the transfer happened last night.  We will miss all of the people who have become so involved in Andrew's care.  The ICU nursing staff and allied staff were terrific and we feel that Andrew received great care there.  Marcie and I became pretty good 'nurses' and we got the feeling that our level of participation was a little unusual, but what else can parents do?  It is a busy bit of work. 

We had the day start yesterday with a rumble and loud bang as a 4.0 earthquake rolled through the Bay area.  Your visit to San Fran is not complete unless you have had one of their earthquakes...forget the cable cars.  Next we got to see Tony, our favourite ICU fixture and respiratory technician who always made us happy, do a take down on an ICU patient who became a little disoriented and tried to do an 'OJ Simpson for the door'...nice work, Tony! (You need to be older to remember those old OJ commercials.)

Andrew is getting a pretty good workout.   Physiotherapy is getting him up a little more and at this point that is exhausting work. Debra is strong and as his PT she will not take, "no".  His appetite is returning and he is starting to devour his food.  He is not ready for pizza, but that is what he wants along with anything involving bacon...I think that bacon-flavoured Ensure would be a big hit for the teenage demographic.  Vaunna came by today from speech therapy and she is the one who will approve the advancement of Andrew's diet, and therefore Andrew is clearly in love with her.

Now we are working on moving to another hospital.  The way that insurance works here is that you have to go through approval processes, insurance providers talking and negotiating with each other, and determinations of where you will end up for your care.   The Canadian system is so different and so easy.  We are wading through the insurance system now that we have improvement in Andrew and we can begin to think of other things.  After that will be the process of getting Andrew back to B.C. and determining where he will best be served.   This means many phone calls.

Marcie got out for a few minutes today with her friend Janet.  It was a beautiful day here and a little fresh air will do her good.  Lastly, Marcie and I had a chuckle last night when I spoke to my good friend Steve, the inspiration to write a blog to keep family and friends informed.  He told me that he tries to figure out who writes the blog on a particular day.  To be clear, even though English 100 was my (Steve's) hardest university course, 100 times more difficult than second year calculus for me,  Marcie gets to edit, but I get to write the blog.  It is a great way to vent, communicate and lastly provide a document that we can show Andrew one day so that we can insist on payback,  big time payback!

13 comments:

  1. Thank goodness, my blog addiction is satiated once again....did you know there is store in Seattle that specializes in every thing bacon,even gum!
    Maybe a side trip?So glad to hear Andrew's appetite is kicking in,such a good sign!
    Spencer informs me that he is really bulking up so I figure we can put Andrew on the same plan! By the way this is the first time you have mentioned "coming home"...let us know if there is anything we can do from a hospital point of view "in person" to get the right help etc.
    Enjoy the vitamin D when you can get it,sunny here today too but only 4 above?!
    tons of love,
    Jennifer, Blair,Tara and Amy

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  2. Why not add an earthquake to the mix? Good luck with the move out of ICU. Hopefully Andrew will not get disoriented on moving - he would need a bunch of "Tonys" to redirect him and probably a whole lot of bacon. Great to hear he is continuing to make progress and we will do whatever we can to get him settled in north of the border. Steve

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  3. Good to read this latest post.Our last entry was also lost somehow, I think. Such great, encouraging news on day 10 for Andrew!! I'm sorry you have to slog through our health care system, it is dreadful. But you Crowleys will prevail.
    We all send a boatload of good wishes across the bay to everyone of Andrew's caretakers and of course to Andrew himself. Keep up all the great progress.
    A big congratulations to Spencer! How exciting.
    Jeff, Sam, Rufus, Rachel, Leslie, Jesse and Reid Walker
    Jim, Carolyn, Cory, Mickey and Jacquie Davis

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  4. I am thinking about you and your family, Andrew. Wishing you all the best in your recovery and hoping you get back home soon. Love Karen Pierce

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  5. Dear Andrew, Marcie and Steve,
    Out of ICU ... yeah !!! Congratulations with this big news. I'm sure it took all day to make it happen. Hope that you got a single room and don't have to share. It's gets a little cramped when you're all in there together. Sorry about having to experience our medical system first hand. Sounds like Andrew and you all have found a routine to the day - but it does sound physically demanding and emotionally exhausting. Day by day....baby steps. Tomorrow in the early afternoon I am planning on dropping off some food at the hospital. I won't bother you, but hope I can just leave it at the nurses station. Just a little dinner and goodies. Hope there's something in there Andrew might be able to enjoy too. Take of yourselves.
    xoxoxox Susie, Ron, Zack, TJ, Alie, Torie and Hannah

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  6. So excited to hear the progress. Pam and I are thinking of you all continually. Much love; we know you'll be back in the north soon but glad everyone in Cali is taking such good care of you.

    See you all soon
    lots of hugs
    john and Pam

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  7. Good to see andrew is on the road to recovery. Will hopefully see him in summer. Hopeing you have a fast recovery buddy
    Ben

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  8. I was shocked to find out about Andrew's accident from an article in a local paper and after reading the blog, I am now so relieved that he has made such incredible progress in such a short time. I hope the love, support, positive wishes and prayers from so many - near and far - continue to help Andrew accomplish many more positive daily milestones in his recovery...and many more shared smiles with his family :) Thinking of you....Eva, Alexine & Liam Hurly

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  9. So glad to hear that Andrew is out of ICU and good luck in the days ahead. I am sure you will all be working extremely hard to get back to BC, but glad to hear you have so much support where you are. Thanks so much for keeping us up-dated on Andrew's progress.
    Much Love,
    Drew, Mel, Emma, Toby and Lucy
    PS By the way, Emma sourced the latest gadget for cooking bacon in the microwave (she was thinking of Toby) so when Andrew is allowed, check out the bacon genie below!!

    https://a248.e.akamai.net/f/248/17859/1d/deliveryag1.download.akamai.com/17859/asseenontv/prod-pages/images/bacon_genie_01.jpg

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  10. Hmmmmm....fondue, pizza, bacon - I'm getting hungry! Hope Vaunna gives Andrew the green light soon. Good luck tackling the hospital phone calls and paper work.
    Aileen, Sean and Family

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  11. We just heard about Andrew's accident and are so relieved to hear he is on the road to recovery!
    What a trying time for all of you - those darn kids!!! Thinking of you and sending lots of positive energy your way! Keep up the good work you awesome parents! xo Kelly and Dan

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  12. Each day another milestone! We think of you and talk about you every day.
    Dave, Les and family
    xo

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  13. Hi Marcie and Steve... I just saw this blog and was very concerned for you all! I Iam relieved to read that Andrew is making good progress and on the road to recovery.. What a shock for you all. I send you good wishes for continued progress.
    Hugs and healing thoughts to you all
    Ceci and Mark , Vanessa and Braeden Phillips

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